Traumatic Brain Injury (TBI)
A traumatic brain injury is an alteration in brain function or other evidence of brain pathology caused by an external force.
- Centre for NeuroSkills Traumatic Brain Injury Resource Guide – This guide provides a wealth of information about traumatic brain injury, the rehabilitation process, current research, news stories, and more.
- National Resource Center for Traumatic Brain Injury – This site provides a catalog of books and videos on TBI. It also offers the opportunity for families to write in with questions about coping with TBI.
- The Rehabilitation Research Center – This website contains information on the activities of the Rehabilitation Research Center, as well as a large collection of easily-accessible online resources, including resource guides, educational materials, newsletters, and bulletin boards.
- Shaken Baby Alliance – Here you can learn about the devastating effects of Shaken Baby Syndrome.
- TBINet – Join one of their listservs and find support on this website.
- Texas Traumatic Brain Injury Advisory Council Webpage – This site lets visitors learn about the Texas Traumatic Brain Injury Advisory Council (TBIAC) and Texas Brain Injury Project (TBIP). Visitors can also access a variety of resources for the state of Texas.
- Traumatic Brain Injury Model Systems Program – This program consists of a group of 17 programs across the United States that work to gather data on brain injury rehabilitation.
Acquired Brain Injury (ABI)
Acquired brain injury is an injury to the brain that has occurred after birth and which is not hereditary, congenital, or degenerative. Causes of ABI include external forces applied to the head and or neck (traumatic brain injury), anoxic/hypoxic injury (cardiac arrest, carbon monoxide poisoning, airway obstruction, hemorrhage, drowning), intracranial surgery, infectious diseases, seizure disorders, toxic exposure (substance abuse, ingestion of lead, inhalation of volatile agents), aneurysms, and vascular obstruction (stroke).
Brain injury affects the whole person, including changes in the physical, emotional, and cognitive areas of the body. These changes can impact how a person reacts to his or her daily life, including school and work, and how s/he manages his or her finances. Relationships and a person’s well being are determined by how well he or she can manage these challenges. The road can seem long and insurmountable, especially without help.
- American Brain Tumor Association – The Tips for Living and Coping (TLC) Bulletin is sent monthly to the ABTA subscribers. Each month, they offer Tips for Living and Coping with the challenges of having a brain tumor.
- The Aneurysm and AVM Support Page – The purpose of this Aneurysm and AVM Support site is not to echo data from many other informative web pages, but to instead be a place for survivors, their families, and those who have lost loved ones to aneurysms to exchange experiences and pre- and post aneurysm diagnoses.
- The Aneurysm Center – HeartCenterOnline – This is the American Heart Association’s member edited encyclopedia and the most comprehensive resource dedicated exclusively to heart health. The site includes a cardiology encyclopedia, news, an active community, animations, and more.
- Brain Aneurysm Foundation – The mission of the Brain Aneurysm Foundation is to provide support networks and educational resources to raise public awareness regarding early detection and treatment of brain aneurysms.
- Encephalitis Information Resource – This site provides comprehensive information and resources for those affected by encephalitis.
- Yahoo Groups Encephalitis Global – Here visitors can find information, chat rooms, member stories, helpful links, and more.
Epilepsy and Seizures
- National Epilepsy Foundation – The Epilepsy Foundation’s goal is to ensure that people with seizures are able to participate in all life experiences. They also believe in preventing, controlling, and curing epilepsy through research, education, advocacy, and various services.
- State Driving Laws – Here you can review the laws for driving with epilepsy in your state or compare laws between states if you are moving.
- American Stroke Association – This is a division of the American Heart Association that provides outreach, promotes research, and publishes a journal. The site includes facts and a guide for women.
- National Stroke Association – The National Stroke Association is a national voluntary health care organization focusing on stroke prevention, treatment, rehabilitation, and research for stroke survivors/families.
- Acute Stroke Toolbox
- National Institute of Neurological Disorders and Stroke (NINDS) – The National Institute of Neurological Disorders and Stroke (NINDS) is the leading supporter of biomedical research on disorders of the brain and nervous system.
- Stroke Awareness for Everyone – Established in 1995, this organization provides information and support to stroke survivors and their families and friends. Caregivers can read a four-chapter handbook from the website.
- Stroke – HeartCenterOnline – This is an American Heart Association member-edited encyclopedia on stroke and is the most comprehensive resource dedicated to heart health. The site includes an encyclopedia, news, community, animations, and more.
- The Stroke Network – This is an online stroke support and information group designed to help everyone in the stroke family. Their stroke support group is available 24/7, and the purpose of their organization is to provide online support for adult stroke survivors and caregivers.
- Stroke-TIA.org – Here you can find articles and webcasts detailing the risk factors, symptoms, treatment, and prevention of stroke and transient ischemic attack.