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Caregiving Resources

care giver, patientAre you caring for someone with a brain injury? Look through this helpful caregivers’ resource list to learn more about the condition and what you can do to help.

Understanding Brain Injury – This video uses simple language and images of real people who have sustained a brain injury, and even includes medical experts and advocates.

Brain Injury FAQs – The mission of the National Resource Center for Traumatic Brain Injury (NRCTBI) is to provide practical information for professionals, persons with brain injury, and their family members.

Traumatic Brain Injury Central – The Brain Injury Research Center of Mount Sinai (BIRC-MS) has a sole focus on conducting research that addresses the challenges of traumatic brain injury, or TBI. It does this primarily through Federal grants.

National Resource Center for Traumatic Brain Injury – The mission of the National Resource Center for Traumatic Brain Injury (NRCTBI) is to provide relevant, practical information for professionals, persons with brain injury, and their family members. The NRCTBI is housed at Virginia Commonwealth University’s Medical College of Virginia Campus.

Brain Injury Resource Center – TBI Consulting Team offers consultations, research assistance, case management services, legal services, and in-service training. Their clientele includes individuals with brain injuries and their families, government officials, agency heads, educators, medical and legal professionals, and social workers.

Facts about Traumatic Brain Injury – The CDC is the nation′s premier health promotion, prevention, and preparedness agency and is a global leader in public health. It remains at the forefront of public health efforts to prevent and control infectious and chronic diseases, injuries, workplace hazards, disabilities, and environmental health threats.

Traumatic Brain Injury Resource Directory – This directory includes hundreds of resources relevant to individuals with brain injury, their families, and friends, and is available in PDF, print, and CD versions.

Well Spouse Association – This group advocates for and addresses the needs of individuals caring for a chronically ill or disabled spouse/partner. It offers peer-to-peer support and educates healthcare professionals and the general public about the special challenges “well” spouses face every day.

Family Caregiver Alliance – This site includes fact sheets, online support, legislative alerts, and a newsletter.

Special Education Law & Advocacy

The National Brain Injury Association, Inc. – Their association website contains the National Directory of Rehabilitation Services, state brain injury offices, information on prevention and cost, upcoming conferences, articles, ask the doctor, and pediatric information.

The Coma Recovery Association (CRA) – This is a non-profit organization located in New York. Their website contains various informational documents and an online library of various topics.

Friends and Survivors Standing Together – This website offers clear steps and information on how to set up a support group in your community.

National Rehabilitation for Information Center – This is a collection of federally-funded research projects, books, articles, information and referral, and database searches. The center offers service to anyone interested in disability and rehabilitation.

Traumatic Brain Injury Resource Guide – This guide contains 30 sections, including for brain map, mild head injury, bookstores, support groups, pharmacology, research grants, and a conference calendar.

Neurotrauma Registry – This is a tool that helps individuals who have sustained a traumatic brain injury, spinal cord injury, or other complex neurotrauma. Using the Neurotrauma Registry, individuals have the ability to locate professional caregivers and associations, such as the Department of Rehabilitative Services, in their geographic areas.

Northeast Rehabilitation Health Network – The network includes information on various topics of disability and rehabilitation.

Second Chance to Live – This is a blog that presents topics in such a way as to encourage, motivate, and empower the reader to live life on life’s terms. Craig J. Philips is a brain injury survivor and has a master’s degree in rehabilitation counseling.

WhileYou Are Waiting – This website is dedicated to people who have a loved one in a coma and provides information and emotional support. The site features coma stories, advice, anatomy, an ICU guide for families, frequently asked questions, legal and financial issues, and advocacy issues in the hospital and nursing home.

For more helpful caregiver resources, contact Texas Brain Injury Alliance at info@texasbia.org.